Well, I guess it's about time I updated the ol'blog. I mean, we only had some of the most important things ever, happen to us this past year...and we are almost half way through 2014!
In a nut shell, we moved back into our house in February, loving the new pain. I found out I was pregnant in March, shocking! It was hardest on Andy who felt like we were just treading water as it was. Andy spent many many weekends with his mom who battled cancer bravely. In June she had surgery and was pronounced cancer free in August. David had his 6th open heart surgery, the Fontan, in July, and although being told to expect a hospital stay of 3-6 weeks, he was home in 1!!!We had follow up x-rays every few days, but being home was worth it! All our prayers were answered above and beyond what we dared hope for. David has since taken off physically. Luke started kindergarten in August. The highlight if the year came on November 14th, being two weeks and one day late, we welcomed Joseph Thomas Sullivan into our family, with a beautifully healing home birth. He is an amazing and good natured little man. Though I could've sworn he was gonna be a girl, I wouldn't trade him for anything! He is the perfect conclusion to our babies. The day before Thanksgiving we found out my mother-in-law has stage 4 lung cancer which she continues to fight. She has inspired all those who know her with her courage and strength. We had a wonderful Christmas and a new year full of adjustments.
Joseph is 6 mths old, starting solids, rocking on his hands and knees, smiling, cooing, shrieking, and growing a wonderful feathery, peach fuss, cap of hair. He still isnt sleeping through the night but it'll happen one of these months!
Lydia is 2 1/2. Just today Andy put her in the shower after she had gone potty alone, tried to wipe her own bum, leaving smear marks all over. Next thing we knew she was upstairs dried and naked with a shirt, shorts and panties in her hands. Andy hollered down for Caleb to go turn off the water in the shower. Well, miss independent had turned it off herself! She loves to TRY to pour milk and cereal, make sandwiches, change Joseph's clothes and diaper, put lotion and make-up on, just about anything and everything!! There are strict penalties for leaving food or other potentially disastrous thing out around here! Oh and she has recently taken to coloring on our couch and walls.
David is doing amazingly! He is down to 3 medications. We started weening his g-tube feeding in September of last year (6 weeks after his surgery). He was getting 100ml an hour for 12 hours each night. It's now May and he's been getting 10mls an hour for the last two months! We went down by 5-10 mls every 2-3 weeks if he'd maintain weight and stay healthy. He is pretty much 100% oral. If we didn't have to juggle blood sugar issues overnight we would've had him off his pump 2 months ago! for now his longest 100% oral stretch was 2 weeks ago when he went 5 days! I then got really sick and couldnt manage the checking his blood sugar 3-5 times a night and nursing JT, so we put him back on for a few days. Then after anothe short stink off the pump he got sick and his blood sugar was effected. We are so close! He can now walk up and down the stairs. He prefers holding my hand but can do it just with a spotter. We are working on him alternating legs. His favorite things are jumping on the trampoline with "my kids" and being spiderman/a power ranger ( the color changing depending on his shirt color for the day.
Luke lost his first two teeth 3 weeks ago. He is the cutest thing every and flashes me his toothless smile randomly through the day so I can faint from his cuteness! I've been reading a Chima chapter book to him each day and he wont let me forget it! Legos are his favorite by a landslide!
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